WITHOUT RESTRAINT

How Skiing Saved My Son’s Life

Robert C. DeLena and Ryan C. DeLena

Robert – The unpredictable

We departed with a black-and-white image of our baby on a thin piece of paper curled at the edges. It was too soon to determine the gender, but I remained convinced that we were having a boy because the profile in the image resembled me, so I assumed our baby would be like me in every possible way. He would study hard, get good grades, bat left, throw right, hate the Yankees, and beg to stay up past his bedtime to see the outcome of playoff games. I would soon learn, though, that there are no scripted plans when it comes to parenthood.

RYAN – What is safe?

Before I knew it, my feet were swept from underneath me and I was on the ground with Cara on top of me, pressing my body hard against the gym floor. I screamed loudly out of pain and fear, causing her to cover my mouth to muffle the disturbance. With her on top of me, I had trouble breathing and honestly thought I might suffocate. While all that was happening, she continued to ask me if I was “ready to be safe,” but I didn’t even know what she meant since she was the one who tackled me. Eventually, I submitted and after a while, she let go. I couldn’t comprehend what had just happened, but something inside me knew things would never be the same again.

Robert – Standing up for others

In his own way, Ryan was a big influence on other students at Bridger. Foster care, group homes, and schools with residential facilities were hardly bastions of free expression. These kids were conditioned to choose compliance over retribution, so Ryan reciprocated by teaching them to advocate, question, and buck the system at every turn. He had the courage to speak up, not only when he believed he was treated unfairly, but anytime he thought his classmates were treated unjustly.

RYAN – Navigating a new landscape

For me, when it came to the technical aspects of skiing, the nine-year career that led me to ski-touring in Antarctica was without adversity, offering a direct line in pursuing my goals. However, it was never that simple. Like our morning zodiac ride across still water, I was forever mindful of the dangerous chunks of ice in my path. For my entire childhood, I was forced to navigate a field of doctors, teachers, and administrators who felt I was unable to walk the halls of any school without medication and constant supervision. Worse, many times I felt as though I was trapped by the ice floe as I was literally held in place until grown-ups deemed that I was ready to return to society.

Robert – A turning point

A few weeks before, during the long flight home from Chile, I decided that Sally and the rest of the SPED system needed to see a touch of crazy from me because our diplomatic approach using Mary Beth’s color-coded files and tabbed expert reports wasn’t getting us anywhere. We were being played, and I was furious with myself for not seeing it years earlier. The more we acquiesced, the more the system patted us on the head and told us everything would get better. Yet, fueled by Dr. Delgado’s observations, I could finally prove that Ryan was getting worse at Parsons. So, when we walked into the meeting with Sally, I decided that it was time to change our approach and demonstrate my willingness to fight. Fortunately, summoning a dose of rage for her to ingest did not require any stretch of my acting abilities because it accurately represented how I felt about Ryan’s decade-long treatment by the system.

RYAN – Remember this Day

Dad struggled a bit toward the top, but he was much better today. He even seemed to laugh more and have fun on the way up, and when we did finally reach the summit, he asked Kurt to take some pictures of us. I just wanted to ski this magnificent beast, but I could tell Dad wanted time to enjoy the moment. At one point, he even looked at me and told me, “Remember this day.” I know my life will have plenty of adventure, but did he really think I could forget standing over this incredible ocean scene at the bottom of the world? I knew he wanted me to think about all that I overcame to get to this day and, although I did think about my childhood during the climb up, now that we were standing on top, I didn’t want to think about anything aside from how special this place was.

Robert – ONCE WE SEPARATED

I was alone on a quiet trail leading to the top of Mt. Washington, stopping frequently to rest, when it finally hit me. Although standing still felt good, unless I started moving, I would never reach the top. Yet, when I took even the smallest and slowest possible steps forward, I advanced.

As I forced myself to slide my feet forward and up the steep pathway, my mind raced through the last decade. The magic carpet, Loon, Stowe, Vail, Snowbird, Big Sky, Chile, and Antarctica. Ryan and I had traveled so far together and learned so much about each other. But, just like stopping to rest over and over during the skin up, for much of his childhood, I stood in place and allowed others to make critical decisions about his care and well-being. Finally, one day, I started putting one foot in front of the other—slowly, even painfully at times—but I kept climbing. I learned that the experts were wrong about him because I came to appreciate that I knew him better. In the process, I watched my son tackle the toughest skiing terrain on the planet with skill, courage, and determination. He refused to quit until he conquered each run on his list. We started on a magic carpet and wound up on a magical continent where we reached the top of the mountain, but we recognized that the story doesn’t end there. Ryan still needed to ski down and then climb back up the next day, and the next. He needed to apply lessons learned on the mountain into his everyday life. More importantly, I needed to apply what I learned watching him ski to his everyday life. I had spent years fighting for his freedom, but now it was time for Ryan to decide where life might take him.

RYan – One Size Does NOT fit all

The saddest part to my story is what happened to the kids I met along the way that weren’t so lucky. Kids who would be doing just fine right now but are living in group homes or residential programs—all because some doctor or school administrator concluded they were hopeless, and their parents listened. Don’t get me wrong. There are people who need support beyond what is available in public school. However, the fact that I was able to slip through the cracks so easily tells me the system is broken. In my experience, the special education system is less about giving kids help and more about making things easier for teachers. Look at me. One day, in a psychology class at LS, we took tests to determine our learning styles. I found out from that testing that I’m a kinesthetic learner, someone who needs to do things to learn them. That test made me think about my childhood. I wasn’t someone that teachers could just stand in front of and lecture. Unfortunately, this is also the hardest learning style to teach in schools. So, when I was in preschool, all teachers saw was a kid who wasn’t paying attention and couldn’t sit still. It makes me wonder how many non-traditional learners are banished each day to schools like SVTA, Bridger, and Parsons. My wish is that mainstream schools would abandon the “one size fits all” approach to learning and try to find what works for students. If someone like me was able to fall through the cracks with two loving parents and a team of specialists at my disposal, imagine what it is like for less fortunate kids. Something needs to change. The bottom line is that an incredible amount of luck played into being where I am today. Had I stayed home that cold day in January of 2009, I never would’ve uncovered my passion for skiing. Throughout my difficult childhood, the only thing that kept me going was getting into the mountains come Saturday. One day, I’ll help others follow their passions, giving them a chance to learn a new skill or helping them have their best day ever in the outdoors.